Charity Number: 1106815
 
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Address:

40 Cygnet Court,
Timothy’s Bridge Road,
Stratford upon Avon,
Warwickshire,
CV37 9NW

Telephone:

01789 267520

Website:

www.smasupportuk.org.uk

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Mission Statement:

Help for today, hope for tomorrow.

About:

We are a UK-wide national charity which informs, supports and empowers families and individuals affected by all forms of Spinal Muscular Atrophy whilst raising awareness of the condition. We also fund and support the research community addressing the causes, treatment and management of SMA.

Spinal Muscular Atrophy Support UK is the name we have recently given to our charity but our work has been on-going since 1985. We were established by a Anita Macaulay whose baby died aged 7 months from SMA Type 1. Anita was told the condition was so rare there were probably only a handful of other parents in Britain who had experience of it, there was no research being made into the SMA and there was no organisation out there to offer her support. At Jennifer's funeral, Anita vowed to change that. She set up the 'Jennifer Trust for Spinal Muscular Atrophy’. Her aim was to make sure no one had a similar experience to her. From Anita's commitment, The Jennifer Trust grew to become the leading charity for Spinal Muscular Atrophy support in the UK offering a very personal service to families and individuals affected by SMA.